Tuesday, July 14, 2015

Day 67: things I've learned, and failed to learn.

In the true style of Lyme disease, the last few weeks have been 2 giant leaps forward followed by what feels like hundreds of steps back. Nothing is more frustrating than seeing the light of day and feeling like anything is possible, to getting slammed back to reality. 

I didn't even check to see when I posted last. It's been a while. I know this because I seem to only post when I'm feeling like life is almost certainly ending and I haven't felt that in quite some time. I had a few rough days here and there (mostly because I'm still trying to figure out how to fall asleep faster and get enough rest to make the days count). The last few weeks have been overall fairly great. I was able to do a 5 hour river float (sunburn included) without any major issues. (Thanks lemon water!)
BBQs, brunches and dinners with all the friend, birthday celebrations and even regular gym visits have been handled without any meltdowns. I've had to change my diet pretty drastically (avoiding sugar like its the Black Plague, limiting my carb intake, buying out the entire stock of lemons from my local grocery stores) and avoiding stress as much as possible. The heat wave was something that tested my relationship more than it tested my ability to tolerate heat. I would never in my life wish the mood swings and rage on any of my worst enemies, let alone someone I love. I've had to find new ways to apologize for having a meltdown because I'm hot, there's traffic and I haven't eaten in the last 2 hours. I don't know if it's because she loves me or because she is loaded with every single crystal and stone that helps you practice patience, but Tiggz has not only allowed me to continue living under the same roof, but also seems to understand and love me even more. I've said it a gazillions times and I'll keep saying it, I've used up all of my luck by finding this human and being the recipient of her love. Thank you. Forever. 

Two nights ago we gathered at my favorite place on earth (not quite Disneyland....JOES CRAB SHACK!!) to celebrate my birthday with a group of friends. The food is diet compliant and the company was amazing and made me forget any ailments I may have been feeling that day. Like the 5 year old that I am inside, I demanded frozen custard after dinner. After numerous warnings against it by people who really just know better, I insisted that "I'll be fine!". Rushed over to my favorite custard place (that was closing in 20 minutes) and proceeded to load myself with the TINY cup because "I shouldn't go balls to the wall". Well. My body didn't care about my rationalizing of the tiny cup. Yesterday and today it reminded me (very clearly) why I have to eat the NO size of anything with sugar. The feeling of eminent death has floated over me nonstop since I woke up yesterday. I'm currently sitting in the bathtub saturated with Epsom salt, attempting to expel this evil chemical out of my body via sweat. TINY CUP=NOT WORTH IT. *sigh* 

So here's what I've learned:

1. Baths in the middle of the day are not stupid, they are a necessity. 
2. Lemon water: did I mention how much lemon water is the holy water for the Lymies? 
3. Sugar is the devil. Dressed in the most delicious clothing. 
4. No, seriously. DONT EAT SUGAR. I don't care if it's your birthday and you want custard. 
5. B12 shots. Never ever ever go longer than the prescribed amount of weeks without a shot. Due to some insurance lapse issues, I had to stretch my dosage over a month (rather than 2 weeks) because I didn't want to feel like shit while at Rollercon. Not my best decision. 
6. Laughter and a hug can probably solve every single issue in the world. If laughing with friends and hugs from your favorite person can ease the chaos of a Lyme flare up, then it can certainly solve any issues the world may be facing.*


There are probably a lot more things I've learned, but, you know, cognitive processing is hard. 

I'm gonna go consume an ocean of lemon water and silently cry out sugar tears while I wait for my human to come home and hug me. 

Still thankful for every single thing and every single person in my life. Thank you for tolerating and continuing to support me. 



*I'm not a professional. That statement might be overshooting the effects of laughter and hugs. But worth trying, right?